Health department to open rare disease clinic at Government Medical College Hospital, Kozhikode, following parents' request for local treatment.
After being diagnosed at three-years-old, Amy reflects on long journey to getting right treatments – enabling her to study violin and karate ...
Health Minister Veena George announces registry for rare diseases, free treatments, and new clinic in Kozhikode.
Five more rare diseases have been identified in the country, making the total number of rare diseases reach 456, according to ...
Thiruvananthapuram: The Kerala government is planning to launch a registry for rare diseases and set up a treatment clinic in ...
Children's Mercy Kansas City has achieved a significant advancement toward the treatment of rare genetic diseases through the ...
Thiruvananthapuram, A registry for rare disease patients in the state will become a reality this year, State Health Minister ...
Altruism values for treatments of rare, severe pediatric diseases have not been estimated. This study found the altruism value for a hypothetical new Duchenne muscular dystrophy treatment to be $80 ...
Declining childhood vaccination rates in the U.S. are raising alarms about a potential resurgence of once-rare diseases like ...
Epidermolysis Bullosa (EB), or butterfly disease, affects 1 in 50,000 people, causing fragile skin that blisters easily, ...
(RTTNews) - MeiraGTx Holdings Plc. (MGTX), Wednesday announced that the U.S. Food and Drug Administration has granted the Rare Pediatric Disease Designation to its AAV8-RK-RetGC program for the ...