After her echocardiogram they are worried that Ruth has trypanosomiasis “African sleeping disease” is the other name we’ve seen used. They suspect her mom passed it down to her. We thought we’d have those results back in 24 hours… unfortunately it’s something that has to be sent off to Cornell. We won’t know for the next 5-7 days whether it’s a positive diagnosis….. What we know for sure is Ruth has DCM and at her age with the current damage to her heart, it’s most likely that best case we end u

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